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Study details
Enrolling now

Improving Congenital Heart Disease Care

University of California, San Francisco
NCT IDNCT06581484ClinicalTrials.gov data as of Apr 2026
Target enrollment

1,000

Study length

about 3 years

Ages

18+

Locations

1 site in CA

About this study

This trial is testing a digital patient empowerment intervention for adults with congenital heart disease. The goal is to help patients feel more confident navigating the adult healthcare system and improve their quality of life. This tool includes features like a medical passport, updated information, community support, and patient stories.

Based on ClinicalTrials.gov records.

What participants do

  • 1.Participate in Digital patient empowerment intervention
Primary goalFeasibility of the intervention

Participation effort

Estimated from trial records. Details can vary by site.

Time + visits
Low4%
Logistics
Moderate50%

Logistics difficulty varies by site location and availability.

Trial highlights

Treatment details

Auto-extracted from trial records to preview treatments and outcomes.

Endpoints

Primary: Feasibility of the intervention, Recruitment rate

Secondary: Euro-Quality of Life